Can you help!

[jeninwa]

Have forwarded the address if you didn't receive pm me I'm doing this on my phone, at work   It's up to you if you want to be anonymous.  You can tell them you are a friend of mine if you want. Doesn't matter.

[Halex]

Cp has done a great card

[Amy :-)]

Thats lovely Hally, very colourful! Well done CP

[jeninwa]

That's lovely Hally thank CP for me please. Ella will love it.

[Halex]

I hope so, getting extra presents will cheer her up.

Posted in express bag

[Yvette]

Poor little thing Jen I will get my son to do something in January after everyone else.

[jeninwa]

Ella received here parcel of Hally and family, big thank you from Ella and her mum,



 This is the photo posted on FB.

[Halex]

Thanks Jen, there was a pink pig rubber as well

She is soooo pretty & cute, big hugs to her

 

[jeninwa]

Ella received a parcel today from Marie,
Thanks Marie the family is very great full.
It's a sad day for them,its 4 years today since Ella lost here father. But the gift made her and her mum smile.

[Emme]

Thanks Jen, a beautiful photo of Ella.  Wishing her all the best with her treatment.

Marie

[Amy :-)]

She is such a little angel

[obbie]

Wishing Ella all the best with her treatment, Obbie

[Cornish Cream]

Just bumping this for anyone who wants to send Ella a letter

[Halex]

Bless her little heart, she seems such a sweetie.
Nice to see she is at home

[jeninwa]

On Boxing Day Ella was taken back to hospital as she become quite unwell, they still have a room at Ronald macdonald house, as mum and gran take turns at the hospital at night.
I have copied Kerryn's last post from FB with there permission.

Wow, what a crazy few days it’s been! Ella’s very up and down at the moment. The biggest complaint at the moment is tummy aches – they come on thick and fast and she requires pain relief quickly to help relieve the pain. Her legs are ok at the moment, but as she had Vincristine (chemo) yesterday, I assume those pains will be back soon. She’s back on steroids this week for 5 days. Again, we wait for monster Ella to make her appearance. Those who did this journey with us last time will remember just how tough it was with Dex and Ella’s behaviour/moods. So, for those who are new on this journey, imagine a 22 year old male body building inside a 5 year old little girls’ body. It’s intense. She can go from 0-100 in seconds and has absolutely no control over it at all. It’s tough on her and it’s tough on us watching her go through that.
Ella’s platelets are low again today so she’s having another transfusion. Her heart rate lowered over night, so she was hooked up to an ECG to check her heart. Results showed normal function, but confirmed bradycardia. Drs have said they aren’t concerned and think that it could be a reaction from the steroids.
When brushing Ella’s hair this morning and significant amount of hair came out. Upset me a little. I knew it would happen again, but as much as you mentally prepare yourself, as you brush out strand after stand it really pulls at the heart strings. Last time we shaved her hair off once it got too thin, but this time I’ll follow Ella’s lead. If she wants us to cut it off, we will, otherwise we’ll let it take it’s course. Our cute little baldy will be back once again.
Hanging out for these 5 weeks to be over (3 more to go!) so we know exactly which path we will be taking. I’m such a planner and really really hate the unknown. Very quickly learning that each cancer patient has their own path that they will follow – no two patients, no matter how identical in diagnosis, will follow the same course of action....and that’s tough.